EVENTS & PROGRAMS
Sydney Mums’ Retreat
The Mums' Retreat is a chance to get away and connect with other mums who have a child with a neuromuscular conditionLEARN MORE
Myotonic MD Meetup
The Myotonic MD Meetup is a great chance to meet others with MMD, make friends, play some fun games, share lunch and a chat in a friendly and supportive environment.LEARN MORE
Our Events are prone to cancellation or postponement depending on Australian Health advice and NSW Government restrictions. We will endeavour to reschedule as many of our events as possible. Up-to-date vaccination status or a valid vaccination exemption certificate is required to attend any MDNSW face-to-face Camp or Retreat program.
Our annual events include:
- Camps for kids
- Weekend retreats for adults
- Sibling days
- Big Red Roll + Stroll
- Neuromuscular Seminar and Research Updates
- Peer Support Group meetings
- MD community day celebration
Also check out our April to June Calendar to help you plan ahead for your engagement with our activities!
What other programs do we run?
Community Access & Recreation Service (CARS)
After receiving important feedback in our community consultations sessions earlier this year, we listened and decided to develop a new and exciting program that enables our members to access the community in a Covid-Safe and fully supported way.
The Community Access and Recreation Service (aka CARS) provides you with the required accessible transport and support staff, so that you and your friends to get out in to the community and do whatever you want to do!
We’re currently developing three different elements of the program, each with a unique experience and focus. The ‘Choose Your Own Adventure’ experience provides you and up to two other friends with your own accessible van and support staff to take you wherever you want to go (within metro Sydney and surrounds) for an entire day.
Our fun and exciting ‘School Holiday Program’ element will keep kids busy during the school holidays throughout the year! If you’re a school aged child living with a neuromuscular condition and are looking for a safe and fully supported way to get out and about this school holidays, then look no further. CARS provides the required accessible transport and support staff, so that you and your friends can get out in to the community and do enjoy some pretty cool activities.
Duke of Edinburgh’s Award
MDNSW runs the Duke of Edinburgh’s Award, where young people with a neuromuscular condition have the opportunity to participate in self-directed activities to earn a Bronze, Silver and Gold Award. Our Duke of Ed participants continue to inspire us with their amazing adventures and achievements.
To learn more about our Duke of Edinburgh program, click here.
Some of our programs are quite popular. Occasionally there may be a waiting list for camps or retreats if we receive a lot of applications. To ensure the system is fair, we will assess applications based on priority. Read our Priority Access Criteria here.
A lot of time and upfront expense goes into every MDNSW camp or retreat. Accommodation, equipment and meals all add up. Read our Cancellation Policy here.