Family and Carers

Being a family member of a person living with muscular dystrophy or other neuromuscular conditions can be challenging and rewarding at the same time. Caring for a family member living with disability can affect the whole family and many people experience stress and isolation.

It’s really helpful to connect to others in similar circumstances to you that share your worries and successes. Informal networks provide a great opportunity to learn of new ways to cope and help you support your loved one to live the life they choose.

We have a number of events and programs for families including:

See our Events page for what is coming up.

Other ways family members choose to connect with the MDNSW community is by representing as board members, participating in consultation days, surveys and even volunteering.

Check out The Peer Collective for stories and information from people in the MDNSW community covering a range of topics that might be of interest for parents, other family members and carers.

And The Loop is a great new resource for the neuromuscular community, featuring stories, condition information and a forum.

Contact us for more information on any of our events and programs.