Mums feel the power of Ngundabba

This story first appeared in Talking Point Winter 2015 issue.

“You should go on the retreat,” said my husband. “You deserve a break and I think you need to get away and meet others.” “Yup,” I said dismissively, thinking I really don’t have time for this and the idea of sharing my most visceral grief and fears with strangers is more than a little daunting. “I’m going to register you,” he responded. By the time the weekend came around I had started thinking that this could be good for me.

Since our son was diagnosed with Duchenne 7 years ago, I have fought to be strong for him. I have fought to get the supports he needs – equipment, school, medical, physio, recreational, respite support.

In the process, I lost some of “me.” I forgot to take the armour off and allow the emotion to spill out – perhaps because I was scared to. What a relief to find “my tribe” and feel normal amongst the amazing group of women at the retreat. We talked, listened, cried, laughed and connected.

I retuned home feeling understood, supported, armed with some practical tips and the wisdom of others … and just a little more relaxed and better able to continue to help my beautiful bright little boy be all that he can be, despite the challenges ahead.

Would I go on the retreat again? Would I recommend it to others? Absolutely!

I took some time to connect with myself and my emotions associated with my son. I had reached a crisis point where I could feel that I needed to do something to help me connect with what was going on and to get off autopilot.

The wonderful ladies around me shared their strength and ideas. I have learned that it is ok to be emotional about what is happening and to show it. It was time.