Keep up-to-date with the latest developments in Australia and around the world with the following links.
Kids Neuroscience Centre (NSW)
News and research articles from the team of scientists, doctors and allied health professionals who study and treat brain, muscle and nerve disorders that affect children and their families. The Kids Neuroscience Centre is located at the The Children’s Hospital at Westmead in Sydney.
Perron Institute for Neurological and Translational Sciences
News and research articles from Western Australia’s longest established medical research institute, located in the Queen Elizabeth II Medical Centre site at Nedlands in Perth.
Australian New Zealand Clinical Trials Registry
The ANZCTR is an online registry of clinical trials being undertaken in Australia, New Zealand and elsewhere. The registry aims to be a comprehensive and prospective national register. Select the “Search Now” button and try the “Advanced Search” function, using “muscular dystrophy” (using quotation marks makes a more effective search).
Muscular Dystrophy Campaign (UK)
A comprehensive, up-to-date and thoughtful site which provides important breaking news and information on research and clinical trials in the UK and around the world. Muscular Dystrophy Campaign is the major MD association in the UK.
Treat NMD (Europe)
TREAT-NMD is a European network which brings together people with neuromuscular diseases and specialists (scientists, healthcare professionals and pharmaceutical companies) working on treatments for these conditions. A particularly good reference site which highlights the serious efforts being made in Europe to research and develop treatments for NMDs and also provides much useful information.
Muscular Dystrophy Association (USA)
The research news page of Muscular Dystrophy Association USA with archives going back over a decade. The organisation was founded by a group of families in 1950.
The muscular dystrophy page of Medline Plus, published by the U.S. National Library of Medicine and the National Institutes of Health. A major reference site for information on all forms of muscular dystrophy, including diagnosis & symptoms, treatment, research, and further reference links.
The news page of the French Muscular Dystrophy Association is conveniently translated into English. AFM-Téléthon is one of the largest and most active MD associations in the world. In 2008 it raised over €100 million through its annual national Telethon which is now part of its name. These funds are used to research and develop treatments and therapies for muscular dystrophy.
Medical News Today USA
A commercial medical news web site with up-to-date news on research related to muscular dystrophy, amyotrophic lateral sclerosis (ALS), Lou Gehrig’s Disease and muscular atrophy.
A link to the search function of the BBC website for news, information and stories related to muscular dystrophy.
Other useful links for information relating to specific MD conditions