The Neuromuscular Information and Research Day was held on Saturday, 22 October 2022 via Zoom and featured a wide range of speakers from both the medical and lived experience perspectives. The event was facilitated by MDNSW Peer Connect Program Coordinator, Carolyn Campbell-McLean, and had 122 people register. Recordings from each session can be watched in the videos below.

Downloadable documents


Part 1: Welcome by Facilitator, Carolyn Campbell-McLean; Presentation by CEO, Muscular Dystrophy Foundation Australia, Fiona Mitchell; Keynote Presentation on Respiratory Health with Dr Amanda Piper and Dr Dominic Fitzgerald; Plenary on Good Bone Health and Falls Prevention with Prof. Craig Munns and Karen Herbert; break performance by MDNSW community member Rob Matthews.

Part 2: Update on the Australian Neuromuscular Disease Registry by Robin Forbes, Lived Experience panel with Jack Bailey, Kate Thomas, Julie Duong and Jamieson Leeson.

Breakout session 1 - What's new with Myotonic? Presented by Dr Didu (Sandi) Kariyawasam, Paediatric Neurologist, SCH & A/Prof Alastair Corbett (Moderator)

Breakout session 2 - Dealing with changes in NMC's - what you need to know. Presented by Dr Lauren Sanders, Clinical Neurologist, St Vincent’s Hospital, Melbourne (Adults) & Joan Martin (Moderator)

Breakout session 3 - How do I optimise mobility for my child? Presented by Sarah Grace, Occupational Therapist (Children) & Dr Michelle Farrar (Moderator)