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The Neuromuscular Information and Research Day was held on Saturday, 17 October via Zoom and featured a wide range of speakers from both the medical and lived experience perspectives. The event was facilitated by MDNSW Project Officer,  Carolyn Campbell-McLean. Recordings from each session can be watched in the videos below. 

 

Official Welcome, Presentation by Assoc. Prof. Michelle Farrar on Gene Therapy and Presentation by MDNSW PhD Samantha Bryen on 'A life in the day of a researcher'.

Breakout session on Facioscapulohumeral Muscular Dystrophy (FSHD) with Professor Alastair Corbett, Neurologist, Concord Hospital.

Breakout session on Spinal Muscular Atrophy (SMA) with Dr Lauren Sanders, Neurologist, St Vincent's Hospital, Melbourne.

Breakout session on Duchenne Muscular Dystrophy (DMD) with Dr Hugo Sampaio, Paediatric Neurologist, Sydney Children's Hospital.

Breakout session on Psychological Support for Transitioning to Adult Life with Kate Tolley, Clinical Nurse Consultant, Youth Health, RNSH.

Breakout session on Parenting with MD with Christie Peolwane, MDNSW member

The Lived Experience Panel session 'Living an Independent Life' with Kristie McCarthy, Chris Hastas and Andrew Grant. Wrap up & Closing remarks.