Tag: Parenting

Is this YOUR Carer?!

I am Frances Turner aged 79 living in a house in Sydney’s Inner West and …

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Growing Up with Spinal Muscular Atrophy

Maija, a young girl in New Zealand talks about her life with SMA, and the …

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Why I don’t want you to feel sorry for my child

When you have a child with a disability or special needs, you learn to develop …

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Living with Dermatomyositis

Welcome. My name’s Rowena Newton and I’m a 40 something wife, mother of two children …

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My Gifts as a Parent with SMA

Something that I have noticed as a parent with Spinal Muscular Atrophy (SMA), is other …

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Team Connor – How we parent our child with Myotonic Muscular Dystrophy

An interview with Nikki Rabold-Cowley Can you tell me a little about yourself and your …

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