Neuromuscular Information & Research Day

22 October 2022
  • Cost:See flyer for more information
  • Location:Zoom
  • Join us on Saturday, 22nd October 2022 for this free virtual event where you’ll hear hear the latest research and medical info along with lived experience stories from the MD community.

    Everyone has questions about their, or their loved one’s condition, the latest research and treatments. We bring people with questions together with people with answers.

    Facilitated by disability advocate and MDNSW Peer Connect Program Coordinator, Carolyn Campbell-McLean, you’ll hear from medical professionals and people with lived experience of neuromuscular conditions on a wide range of topical issues, including:

    • Wellbeing in a COVID (and everything else!) World, presented by Dr Amanda Piper, Senior Physiotherapist, Department of Respiratory & Sleep Medicine, Royal Prince Alfred Hospital
    • Optimising breathing when living with a neuromuscular condition, presented by Dr Dominic Fitzgerald, Respiratory Physician, Children’s Hospital Westmead.
    • The Importance of Good Bone Health, presented by Prof Craig Munns, Professor of Paediatrics & Director, Child Health Research Centre, Brisbane.
    • Falls Prevention & Management in Adults and Children, presented by Karen Herbert, Physiotherapist, Sydney Children’s Hospital.
    • Registry & Clinical Trials Update, presented by Robin Forbes, Coordinator, Australian Neuromuscular Disease Registry.
    • What’s new with Myotonic MD? Presented by Dr Sandi Kariyawasam, Paediatric Neurologist, Sydney Children’s Hospital.
    • Dealing with changes in NMC’s (Mobility, BiPAP, Support Workers and more!), presented by Dr Lauren Sanders, Clinical Neurologist, St Vincen’ts Hospital, Melbourne (Adults).
    • How do I optimise mobility for my child? Presented by Sarah-Grace Paguinto, Occupational Therapist, Sydney Children’s Hospital.
    • Lived Experience Panel: Living Your Passion – a panel of people with lived experience of neuromuscular conditions sharing their stories and knowledge. Panelists include Jack Bailey, Jamieson Leeson, Kate Thomas and Julie Duong.
    If you’re an MDNSW member, or just someone interested in information on Neuromuscular conditions this event is for you!


    If you have any questions, please contact us at or on 1800 635 109.