Neuromuscular Information & Research Day

9 October 2021
  • Cost:See flyer for more information
  • Location:Zoom
  • Join us on Saturday, 9th October 2021 for this free virtual event where you’ll hear hear the latest research and medical info along with lived experience stories from the MD community.

    Everyone has questions about their, or their loved one’s condition, the latest research and treatments. We bring people with questions together with people with answers.

    Facilitated by disability advocate and MDNSW Peer Connect Program Coordinator, Carolyn Campbell-McLean, you’ll hear from medical professionals and people with lived experience of neuromuscular conditions on a wide range of topical issues, including:

    • MDFA Update & The Loop: Ryan Talsma, CEO, Muscular Dystrophy Foundation Australia
    • Registry & Clinical Trials: Prof. Monique Ryan, Department of Neurology, Royal Children’s Hospital, Melbourne & Robin Forbes, Coordinator, Australian Neuromuscular Disease Registry
    • Hearts & Lungs: Dr David Tanous, Cardiologist, Westmead Private, Westmead & Auburn Hospitals & Dr Amanda Piper, Department of Respiratory & Sleep Medicine, Royal Prince Alfred Hospital
    • SMA Treatment Breakout Session: A/Prof Michelle Farrar, Paediatric Neurologist, Sydney Children’s Hospital & Dr Christina Liang, Neurologist, Neuromuscular Clinic, Royal North Shore Hospital
    • DMD Update: Clinical Assoc. Professor Kristi Jones, Head of Genomic Medicine, The Children’s Hospital at Westmead
    • What can a Neurologist do for you? Dr Lauren Sanders, Clinical Neurologist, St Vincent’s Hospital (Melbourne)
    • Lived Experience Panel – Lived Experience – a panel of people with lived experience of neuromuscular conditions sharing their stories and knowledge. Panelists include Jack Wason, Lisa Brown, Abrahim D’arouiche, and James Dunstan
    If you’re an MDNSW member, or just someone interested in information on Neuromuscular conditions this event is for you!


    If you have any questions, please contact us at or on 1800 635 109.