The Neuromuscular Information and Research Day was held on Saturday, 9 October via Zoom and featured a wide range of speakers from both the medical and lived experience perspectives. The event was facilitated by MDNSW Peer Connect Program Coordinator,  Carolyn Campbell-McLean, and had 166 people register. Recordings from each session can be watched in the videos below and accompanying speaker presentations downloaded.

Downloadable documents


Official Welcome to Country by Olivia Eggleton; Presentation by CEO, Muscular Dystrophy Foundation Australia, Ryan Talsma; Keynote Presentation on Registry & Clinical Trials by Prof. Monique Ryan and Robin Forbes, Australian Neuromuscular Disease registry; Plenary on Hearts & Lungs by Dr David Tanous, Cardiologist and Dr Amanda Piper, Respiratory Care Specialist & Lived Experience Panel with Jack, Lisa, Abrahim and James

Breakout session - SMA Treatment Update with Assoc Prof. Michelle Farrar, Paediatric Neurologist & Dr Christina Liang, Neurologist

Breakout session - DMD Update with Clinical Assoc Prof Kristi Jones & Dr Michelle Lorentzos, Sydney Children’s Hospitals Network

Breakout session - What can a Neurologist do for you with Assoc. Prof Lauren Sanders, Clinical Neurologist