Info and Resources on Sexuality and Relationships
We talked about Sex and Relationships! Of course, people with disability have sexual desires, feelings …
READ MORELove, Life & Loss
Dating, love, marriage, sex and sexuality...
All families have their ups and downs
Parenting a child with MD, and parenting as a person with MD
There are no rights or wrongs with grief, everyone copes in different ways. Information and resources on this part of life.
Relationships & Sexuality
Sexual supports and the NDIS
An important article on the recent Federal Court findings regarding sexual supports, written by Dr …
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“Iso reading” book review
Awesome Australian disability advocate Carly Finlay reviews US YouTube sensation Shane Burcaw’s autobiographical, humorous read …
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Love, don’t Judge
This interabled couple from Victoria share their story on Love Don’t Judge
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Taking a Chance on Love
An Interview with Natalie Macaulay Natalie generously shares her story about how she met and …
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Accessing Sex Worker Resources
Everyone has a right to sexual expression and that includes people with disability. Touching Base …
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Podcast – Hot, disabled and not afraid to show it
From the BBC Podcast Series Ouch: Disability Talk This podcast features a light-hearted discussion with …
READ MOREFamilies & Carers
Making our voices heard
My Doctors Laughed Being a foster child, I have never had a family history to …
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Laughter really is the best medicine
Hi, I’m Marie 😊 I want to share my story and recent experiences of first-time …
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Is this YOUR Carer?!
I am Frances Turner aged 81 living in a house in Sydney’s Inner West and …
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Resources for parents
The office of the NSW Kid’s Guardian has produced a comprehensive list of resources of …
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Growing Up with Spinal Muscular Atrophy
Maija, a young girl in New Zealand talks about her life with SMA, and the …
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A Grandfather’s Story
Family Bio Our names are Patty and Peter O’Keeffe and we have been caring …
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Why I don’t want you to feel sorry for my child
When you have a child with a disability or special needs, you learn to develop …
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Interview with a Grandmother – A Family Story Part 2
Anne-Maree Warman shares the second part of her conversation with MDNSW Project Officer Carolyn …
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Interview with a Grandmother – A Family Story Part 1
Anne-Maree Warman’s work at the Teacher’s Mutual Bank, allows her to volunteer for MDNSW as …
READ MOREParenting
My journey to parenthood
Written by Brenton Smith When I lived by myself with friends, Chrissie was my friends …
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Making our voices heard
My Doctors Laughed Being a foster child, I have never had a family history to …
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Resources for parents
The office of the NSW Kid’s Guardian has produced a comprehensive list of resources of …
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Why I don’t want you to feel sorry for my child
When you have a child with a disability or special needs, you learn to develop …
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Living with Dermatomyositis
Welcome. My name’s Rowena Newton and I’m a 40 something wife, mother of two children …
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Gatecrashing MD – Living with an undiagnosed, adult-onset neuromuscular condition
When I walked out of the office of an Ad Agency in Pyrmont one Friday …
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My Gifts as a Parent with SMA
Something that I have noticed as a parent with Spinal Muscular Atrophy (SMA), is other …
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Team Connor – How we parent our child with Myotonic Muscular Dystrophy
An interview with Nikki Rabold-Cowley Can you tell me a little about yourself and your …
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Being disabled doesn’t stop us being great parents
This wonderful video from England tells the story of two people with disability raising their …
READ MOREGrief & Loss
Making our voices heard
My Doctors Laughed Being a foster child, I have never had a family history to …
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Online Grief Information Sessions
Online Grief Information Sessions with two Grief Counsellors During times of crisis many of us …
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In Memoriam
IN MEMORIAM Losing a loved one to muscular dystrophy can leave you feeling lost and …
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Diagnosis
An excerpt from The Ben Book: A Father’s Memoir appears below, with the author’s permission. …
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Palliative Care Resources
NSW Health has produced a series of accessible materials to help families discuss end-of-life and …
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Moving forward with grief
In this TED Talk, Nora McInerny talks candidly about dealing with grief.
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