Category: Uncategorized

John finds his independence at Camp

Meet John… he is nine years old and lives with Congenital Myotonic Dystrophy. In April …

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Peers Show and Tell their best Assistive Technology

In late June, we held a Peer Connect Info Share Innovation Showcase online with 7 …

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Spring clean your health with Sugar Free September

With Spring less than one month away, don’t let your house get all the spring …

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We’re supporting the Australian Neuromuscular Disease Registry

The Australian Neuromuscular Disease Registry (ANMDR) is an Australia-wide registry of people diagnosed with a …

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Reports on NDIS participants with Sensory Disability and Neurodegenerative Conditions released

See below the Media Release from the NDIS, 1/7/21. We have released two deep dive …

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Covid-19 Update – Changes to programs and services

In accordance with the NSW Government’s lockdown in place for Greater Sydney, Wollongong, Shellharbour, Central …

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Respiratory equipment recall from Philips

Important information regarding equipment recall by Philips: “Philips voluntarily decided to issue a global recall …

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Peers Connect at Newcastle Retreat

On Friday 21 May, a group of 22 adults living with MD and their partners …

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Talking Point out now!

Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information …

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Launch of the 2022 FIPFA Powerchair Football World Cup

The 2022 FIPFA Powerchair Football World Cup was launched at Parramatta’s Bankwest Stadium on Thursday …

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Registration for Summer Camp now open!

Summer Camp is being held from the 18-22 December and, after having to cancel last year’s …

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We need a treatment for adults with SMA

Recently PBAC announced that Risdiplam was recommended for those under 18 but not for those …

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Book in now for the Peer Connect Retreat

We are holding this years Peer Connect Retreat for adults with a neuromuscular condition in …

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A Message from our Patron

Read the message of support for the Big Red Roll + Stroll from Her Excellency, …

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Parenting with MD Wrap Up

Last month a group of five parents with MD joined in for a fantastic 2-hour …

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Talking Point out now!

Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information …

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Update on commencement of Covid-19 vaccine rollout

The Australian Government Department of Health (Department of Health) has issued information about the roll …

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Powerchair Football – An interview with Jaxon Taylor

With the 2021 Sydney powerchair football season set to kick off on Saturday 20th February, …

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Are you going Sugar Free this year?

Register your interest for Sugar Free September today! Have you ever thought about giving up …

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Register now for the Big Red Roll + Stroll

Whether you run, roll or stroll across the finish line, join us for a great …

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