Category: Uncategorized

MD Makers gonna make!

18 people from our neuromuscular community gathered for MDNSW’s first Makers Day at the Dooleys …

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Exciting new partnership announcement – Welcome WeFlex

For people living with a muscle wasting condition like muscular dystrophy, going to the gym …

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Going sugar free is hard, but living with muscular dystrophy is much harder

Approximately 1 in 500 Australians live with an incurable genetic neuromuscular condition that progressively deteriorates …

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Talking Point – August Edition

The August edition of Talking Point is out now! Hear the latest news on: Peer …

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Changes to the MDNSW Board

Recently we said thank you and farewell to long serving MDNSW Board Directors, Dr Christina …

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Have your say in a national rare disease project

Did you know that an estimated 2 million Australians live with a rare disease? Despite …

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Talking Point – July Edition

The July edition of Talking Point is out now! Hear the latest news on: Peer …

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Plastic single-use straws – exemptions guidance

From 1 November 2022, the supply of plastic single-use straws will be banned in NSW. …

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Peers talk Independent Living and Support

Our June Info Share session was all about independent living and support. Ten peers joined …

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Talking Point – June Edition

The June edition of Talking Point is out now! Hear the latest news on: Peer …

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Connection, Community and Celebration at the Peer Connect Retreat

Written by Carolyn Campbell-McLean This years Peer Connect Retreat was held at the Rydges Hotel …

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Ask A Scientist – Get answers straight from the experts

The experts at the Kids Neuroscience Centre, part of the Sydney Children’s Hospital Network, are …

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FSHD Global Research Foundation’s “FSHD Medical Education Portal”

The FSHD Global Research Foundation focuses on finding treatments and a cure for FSHD. In …

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Talking Point – May Edition

The May edition of Talking Point is out now! Hear the latest news on: Peer …

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John’s first time at Adventure Camp

Our Adventure Camp was held in April, and for 7 year old John who lives …

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Join the MDNSW Team – OT position available!

Occupational Therapist – Physical Disability/Neuromuscular Specialist | $60 – $94.99 per hour |Casual This is …

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Medical Imaging and Women’s Health Services Survey Report

Last year, you may have participated in the Medical Imaging and Women’s Health Services Survey …

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Help us plan and provide for a neuromuscular community you deserve

It’s that time of year again, where we ask you – our neuromuscular community – …

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Talking Point – March Edition

The March edition of Talking Point is out now! Hear the latest news on: Peer …

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Latest Peer Connect Calendar out now!

Connections are important, especially in these times, so MDNSW is running a mix of online …

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