…the almost five-year mystery without any medical training!), ‘Are you sure it’s not MS?’ they say. They then get stuck on the ‘Why’ and the ‘How could this happen?’ Mostly,…
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Gatecrashing MD – Living with an undiagnosed, adult-onset neuromuscular condition
Adventure Camp
What: For kids and young people 6-18 with who have some level of independent mobility. Join us for a unique adventure of a lifetime! Who: Kids and young people 6-18…
Read MoreInfo Share Online Short – Term Accommodation
…around Australia. The session will be held on Wednesday, 23 August at 7pm – 9pm. To register for this online session please RSVP to Carolyn at carolyn.cm@mdnsw.org.au or on 0408472510….
Read MoreInfo Share Online – Parenting with MD
…and challenges. The session will be held on Tuesday, 25 July at 7pm – 9pm. To register for this online session please RSVP to Carolyn at carolyn.cm@mdnsw.org.au or on 0408472510….
Read MoreInfo Share Online – Getting the Best from Your Support Workers
…held on Wednesday, 22 Nov 2023 at 7.30pm – 9pm. To register for this online session please RSVP to Carolyn by 20 Nov 2023 at carolyn.cm@mdnsw.org.au or on 0408472510. …
Read MoreInfo Share Online – Keeping Our Minds Healthy
…on Wednesday, 25 Oct 2023 at 7.30pm – 9pm To register for this online session please RSVP to Carolyn by 23 Oct 2023 at carolyn.cm@mdnsw.org.au or on 0408472510. …
Read MoreCelebrating the wonderful women in our MD community for International Women’s Day
On Tuesday, 7th March, we hosted our International Women’s Day High Tea at Waterview, Bicentennial Park. 35 wonderful women came together in purple to celebrate the strength and resilience of…
Read MoreInfo and Resources on Sexuality and Relationships
…article Liz supplied about one couples experience of para orgasm Family Planning NSW – https://www.fpnsw.org.au/who-we-help/disability – covers a wide range of projects, resources and workshops for people with intellectual disability…
Read MoreReports on NDIS participants with Sensory Disability and Neurodegenerative Conditions released
…449,998 active NDIS participants with an approved plan. Of these 14,389 had a neurodegenerative condition: 2,258 (0.5%) had Muscular dystrophy 945 (0.2%) had Huntington’s disease 789 (0.2%) had Motor neurone…
Read MoreMy journey to parenthood
…family. There are some ups and downs emotionally, but I love being a Dad, and it’s the most rewarding experience I have ever had. Having a wife to support, encourage,…
Read MoreScholarship Opportunities for Students with Disability
…to pay for expenses like textbooks, library and internet charges, on campus accommodation, transport, stationery, computer equipment, personal care and other related expenses. Gregory and Dolores Farrell Scholarship The Gregory…
Read MoreChanges to the MDNSW Board
…his role as Chairman of the MDFA Board; and Michelle with expert knowledge in fundraising and marketing, ensured the growth and prosperity of our Sugar Free September campaign. We’ll miss…
Read MoreA Life with Robert (Bob) Lamb
A Life with Robert (Bob) Lamb 13/10/1948 – 21/12/ 2018 Bob and I met on 3 December 1966 at the Kingsgrove Methodist Church Friday night dance for teenagers, I was…
Read MorePeer Connect
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Talking Point out now!
Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information coming out of our association. It also features the latest news from our programs, members…
Read MoreTalking Point – June 2020
…research and information coming out of our association. It also features the latest news from our programs, members achievements, fundraising activities, sporting events and more! Read the June Edition ->…
Read MoreTalking Point Out Now
Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information coming out of our association. It also features the latest news from our programs, members…
Read MoreTalking Point 2020
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Talking Point 2019
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Talking Point out now!
Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information coming out of our association. It also features the latest news from our programs, members…
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