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Gatecrashing MD – Living with an undiagnosed, adult-onset neuromuscular condition

…the almost five-year mystery without any medical training!), ‘Are you sure it’s not MS?’ they say. They then get stuck on the ‘Why’ and the ‘How could this happen?’ Mostly,…

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Adventure Camp

What: For kids and young people 6-18 with who have some level of independent mobility. Join us for a unique adventure of a lifetime! Who: Kids and young people 6-18…

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Info Share Online Short – Term Accommodation

…around Australia. The session will be held on Wednesday, 23 August at 7pm – 9pm. To register for this online session please RSVP to Carolyn at carolyn.cm@mdnsw.org.au or on 0408472510….

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Info Share Online – Parenting with MD

and challenges. The session will be held on Tuesday, 25 July at 7pm – 9pm. To register for this online session please RSVP to Carolyn at carolyn.cm@mdnsw.org.au or on 0408472510….

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Info Share Online – Getting the Best from Your Support Workers

…held on Wednesday, 22 Nov 2023 at 7.30pm – 9pm. To register for this online session please RSVP to Carolyn by 20 Nov 2023 at carolyn.cm@mdnsw.org.au or on 0408472510.  …

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Info Share Online – Keeping Our Minds Healthy

…on Wednesday, 25 Oct 2023 at 7.30pm – 9pm To register for this online session please RSVP to Carolyn by 23 Oct 2023 at carolyn.cm@mdnsw.org.au or on 0408472510.    …

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Celebrating the wonderful women in our MD community for International Women’s Day

On Tuesday, 7th March, we hosted our International Women’s Day High Tea at Waterview, Bicentennial Park. 35 wonderful women came together in purple to celebrate the strength and resilience of…

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Info and Resources on Sexuality and Relationships

…article Liz supplied about one couples experience of para orgasm Family Planning NSW – https://www.fpnsw.org.au/who-we-help/disability – covers a wide range of projects, resources and workshops for people with intellectual disability…

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Reports on NDIS participants with Sensory Disability and Neurodegenerative Conditions released

…449,998 active NDIS participants with an approved plan. Of these 14,389 had a neurodegenerative condition: 2,258 (0.5%) had Muscular dystrophy 945 (0.2%) had Huntington’s disease 789 (0.2%) had Motor neurone…

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My journey to parenthood

…family. There are some ups and downs emotionally, but I love being a Dad, and it’s the most rewarding experience I have ever had. Having a wife to support, encourage,…

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Scholarship Opportunities for Students with Disability

…to pay for expenses like textbooks, library and internet charges, on campus accommodation, transport, stationery, computer equipment, personal care and other related expenses. Gregory and Dolores Farrell Scholarship The Gregory…

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Changes to the MDNSW Board

…his role as Chairman of the MDFA Board; and Michelle with expert knowledge in fundraising and marketing, ensured the growth and prosperity of our Sugar Free September campaign. We’ll miss…

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A Life with Robert (Bob) Lamb

A Life with Robert (Bob) Lamb 13/10/1948 – 21/12/ 2018 Bob and I met on 3 December 1966 at the Kingsgrove Methodist Church Friday night dance for teenagers, I was…

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Peer Connect

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Talking Point out now!

Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information coming out of our association. It also features the latest news from our programs, members…

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Talking Point – June 2020

…research and information coming out of our association. It also features the latest news from our programs, members achievements, fundraising activities, sporting events and more! Read the June Edition ->…

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Talking Point Out Now

Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information coming out of our association. It also features the latest news from our programs, members…

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Talking Point 2020

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Talking Point 2019

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Talking Point out now!

Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information coming out of our association. It also features the latest news from our programs, members…

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