…to enjoy. My guides also get me onto the lifts and t-bars (sounds and looks impossible, but it’s actually a smooth process!). The guides are volunteers, and I am very…

…plays at his local club in the Cronulla-Sutherland Shire! Please send your Expressions of Interest in an email to: Sasha Ulasowski Pathways General Manager E: pathways@boccia.com.au M: 0439788352 Once they…

…helping people dealing with the devastating effects of Muscular Dystrophy. It’s a win-win! Click here and complete your details and be the first to know when Sugar Free September opens!…

…highlight for Danny, he just about saw everyone including Madonna, Elton (4 times!), Michael Jackson, Queen, Dire Straits, Billy Joel, Pink, Dido and the list goes on and on. He…

…help to reach our goal of raising $200,000 to give sweet opportunities to kids and adults with muscular dystrophy. You”ll also be getting healthy, it’s a win-win! Register here: www.sugarfreeseptember.org.au…

The Disability Gateway is for all Australians with disability, whether they are a National Disability Insurance Scheme (NDIS) participant or not. The Disability Gateway is available at disabilitygateway.gov.au and the…

…will be there and are asking MD community members to come along and try the sport out! The SYDNEY EVENT is scheduled for Saturday 2nd April 2022, 1.30pm- 4pm, at…

…https://musculardystrophynews.com/2021/06/08/ionis-molecule-shows-early-promise-for-myotonic-dystrophy-type-1-mouse-model-study/ Another study published in 2021 have used a neat CRISPR/Cas9 approach to silence toxic DMPK messenger RNAs. Batra et al.,(6) used an adeno-associated virus (AAV) to deliver an inactive…

…is very important. Walkers, or wheelie-walkers are common. Remember these things when buying yours. 1. 4 wheels are safer than 3 wheels 2. Bigger wheels are safer than smaller ones…

…dystrophy and my interests include gaming, sport, music, learning and socialising. I live in Sydney, Australia. In this story I share my journey with tertiary education, and how it’s helped…

…Coronavirus). Bio Jamie Larsen is 15 years old and lives with big brother Kristian (18), Bridget (mum), Carsten (dad) and Colonel (an affectionate Golden Retriever). When not occupied with work,…

…FREE! Just visit www.hireup.com.au/partnership-mdnsw Through the support received from Hireup, we’ll be able to not only enhance our online Peer Connect program, but also introduce new and exciting client service…

…paperwork or headaches by any type of “middle-men”. Along the way I have gained excellent skills in the process of managing my services, people skills, management, rostering, negotiation and so…

…and I am less embarrassed about the things I’m going through because people can relate. I wouldn’t share these problems with people who have other disabilities.” “I’ve always liked face-to-face…

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The March edition of Talking Point is out now! Hear the latest news on: Peer Connect, including recaps of what’s been happening and what’s coming up Fundraising campaigns and events…

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