Tag: muscular dystrophy

Women Sparkle and Shine at the MDNSW Women’s Retreat

Last weekend, a group of 8 women living with NMCs and their support workers came …

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The Power of Powerchair Hockey – Three player perspectives

Ryan Seck: “My name is Ryan and I’m currently 16 years old. Being diagnosed with …

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Peer Connect Retreat heads to Parramatta

Over the weekend of 26 – 28 May a group of 20 people with NMCs …

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Life After School Info Share Session

Last month our Info Share topic was Life After School. The topic was inspired after …

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A donors journey with MD – Giving the gift of a donation

My journey began over 40 years ago when through a mutual friend I met my …

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My journey to parenthood

Written by Brenton Smith When I lived by myself with friends, Chrissie was my friends …

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Making our voices heard

My Doctors Laughed Being a foster child, I have never had a family history to …

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In the midst of a pandemic, time is precious for those with a progressive condition

People living with a disability can have altered, or even shortened time limitations. As society’s …

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Is this YOUR Carer?!

I am Frances Turner aged 81 living in a house in Sydney’s Inner West and …

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The Loop

When it comes to useful resources for people living with neuromuscular conditions, The Loop is …

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