Health, Support & Wellbeing

  • Living with NMCs

    Stories from people with neuromuscular conditions living the life they choose.

  • Support Workers

    Managing support workers, and learning to be a boss - it can be a learning curve for many!

  • Independent Living

    Thinking about living independently? Or maybe you're housing-curious? Come here to find out info on independent living, accessible housing and more!

  • Mental Health

    You don't need to go through a mental health crisis alone, there are services and supports out there for everyone, including you.

  • Covid Collective

    Stories, resources and tips on dealing with the pandemic.

  • Therapies

  • Living with NMCs

    Escape from the Country

    Hi, I’m Jack Wason, I’m 19, I have Duchenne Muscular Dystrophy and grew up on …

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    Living to Live

    After being given the opportunity to have a go at shooting and subsequently becoming part …

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    Nutrition in DMD

    A range of resources and videos on nutrition for people living with Duchenne MD, including …

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    Is this YOUR Carer?!

    I am Frances Turner aged 79 living in a house in Sydney’s Inner West and …

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    The Loop

    When it comes to useful resources for people living with neuromuscular conditions, The Loop is …

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    Neuromuscular Fact Sheets

    To address some of the issues identified by people with neuromuscular conditions in getting appropriate …

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    Growing Up with Spinal Muscular Atrophy

    Maija, a young girl in New Zealand talks about her life with SMA, and the …

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    Living his best life

    Dr Phil interviews 17 year old Jake and his Mum about not letting Duchenne Muscular …

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    Advice From Strangers

    I was catching the train through the inner west of Sydney a few weeks ago, …

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    Don’t go down without a fight

    Muscular Dystrophy Queensland created a platform for people in the neuromuscular community to share their …

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    Breath of Fresh Air

    For a long time I had known that the likelihood of needing nocturnal ventilation was …

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    Living a Full Life with Muscular Dystrophy

    This video from Canada is about a man with Becker MD, who challenges society’s assumptions …

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    Living with Dermatomyositis

    Welcome. My name’s Rowena Newton and I’m a 40 something wife, mother of two children …

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    Gatecrashing MD – Living with an undiagnosed, adult-onset neuromuscular condition

    When I walked out of the office of an Ad Agency in Pyrmont one Friday …

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    Living with SMA

    My name is Ellie Robertson and I am a woman living with Spinal Muscular Atrophy …

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    8 days a week – Support Workers and How I Learned to Be the Boss

    Support workers. I don’t know about you, but sometimes I feel as though they are …

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    Team Connor – How we parent our child with Myotonic Muscular Dystrophy

    An interview with Nikki Rabold-Cowley Can you tell me a little about yourself and your …

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    Finding my way, with CMT

    Living with Charcot Marie Tooth Syndrome (CMT), a type of neuromuscular disease, can be seen …

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    Living with Inclusion Body Myositis

    My name is Gordon Osmond, I am a retired acrylic and oil artist and I …

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    Kids meet a guy with Muscular Dystrophy

    This cute video from America features Amin Lakhani talking frankly to kids who are curious …

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    This is Me – Scott

    Scott is a young man with a plan. He wants to work in the travel …

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    Fashionably yours

    This video features a young woman named Ellie DP, from Essex, UK. She is a …

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    Normal, Normal

    Philip Hojgaard-Olsen is a 19 year old Australian whose biggest dream is to move out …

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    Peter Dalrymple – Mind over Muscle

    “Mind Over Muscle” is a biographical short film by the late Peter Dalrymple, chronicling his …

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    Support Workers

    Laughter really is the best medicine

    Hi, I’m Marie 😊 I want to share my story and recent experiences of first-time …

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    Worker Screening for Self-managing participants

    The NDIS has produced a number of guides on how to screen support workers for …

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    Escape from the Country

    Hi, I’m Jack Wason, I’m 19, I have Duchenne Muscular Dystrophy and grew up on …

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    Grow Bold

    Pete Timbs talks with his co-host Tristram and his support worker Dan Conaghan. Tristram is …

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    There’s no ‘I’ in Team: Lessons in creating your own dream team

    A self-directed approach enables me to recruit and choose my own team of staff who …

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    8 days a week – Support Workers and How I Learned to Be the Boss

    Support workers. I don’t know about you, but sometimes I feel as though they are …

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    The Journey towards Self-Management

    Back in 2007 I worked as a research associate on an evaluation of the pilot …

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    Independent Living

    Accessible Housing options

    Housinghub.org.au is a national website that advertises properties for people with disability. It is free …

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    Mental Health

    Online Grief Information Sessions

    Online Grief Information Sessions with two Grief Counsellors During times of crisis many of us …

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    Disability Royal Commission – Counselling and support service

    Counselling and support for people affected by the Disability Royal Commission Relationships Australia NSW is …

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    Seek Help for your Mental Health

    Muscular Dystrophy News is a US based digital news publication dedicated to offering comprehensive daily …

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    Waiting for your story

    That’s right, if you’re interested in this topic, you might have something to say about …

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    Covid Collective

    Covid-19 Hub from People with Disability Australia

    People with disability face specific challenges during the COVID-19 pandemic. People with Disability Australia has …

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    Coronavirus (COVID-19) information for people with disability

    Head to the NDIS Commission website for links to updates about COVID-19 and resources for …

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    Omicron wreaks havoc on NSW’s vulnerable

    Ellie Robertson has one simple question. The 53-year-old Sydney woman lives with spinal muscular atrophy …

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    In the midst of a pandemic, time is precious for those with a progressive condition

    People living with a disability can have altered, or even shortened time limitations. As society’s …

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    As a disabled person trying to ‘live with’ Covid in Australia, every day is a game of figuring out who is least likely to kill me

    I’m the disabled guy on several committees, advising governments what to do to keep people …

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    Woman living with muscular dystrophy forced to spend $1,300 on rapid antigen tests for in-home carers

    It’s not easy to quantify the cost of the Omicron wave to Carolyn Campbell-McLean, but …

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    COVID ‘Freedom Day’ is a terrifying prospect for some people. I am one of them.

    I recently received a text from a friend asking: “Are you excited for freedom?” A …

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    Therapies

    Waiting for your story

    That’s right, if you’re interested in this topic, you might have something to say about …

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