A range of resources and videos on nutrition for people living with Duchenne MD, including
Health, Support & Wellbeing
Stories from people with neuromuscular conditions living the life they choose.
Managing support workers, and learning to be a boss - it can be a learning curve for many!
Living with NMCs
I am Frances Turner aged 79 living in a house in Sydney’s Inner West and
When it comes to useful resources for people living with neuromuscular conditions, The Loop is
To address some of the issues identified by people with neuromuscular conditions in getting appropriate
Maija, a young girl in New Zealand talks about her life with SMA, and the
Dr Phil interviews 17 year old Jake and his Mum about not letting Duchenne Muscular
I was catching the train through the inner west of Sydney a few weeks ago,
Muscular Dystrophy Queensland created a platform for people in the neuromuscular community to share their
For a long time I had known that the likelihood of needing nocturnal ventilation was
This video from Canada is about a man with Becker MD, who challenges society’s assumptions
Welcome. My name’s Rowena Newton and I’m a 40 something wife, mother of two children
When I walked out of the office of an Ad Agency in Pyrmont one Friday
My name is Ellie Robertson and I am a woman living with Spinal Muscular Atrophy
Support workers. I don’t know about you, but sometimes I feel as though they are
An interview with Nikki Rabold-Cowley Can you tell me a little about yourself and your
Living with Charcot Marie Tooth Syndrome (CMT), a type of neuromuscular disease, can be seen
My name is Gordon Osmond, I am a retired acrylic and oil artist and I
This cute video from America features Amin Lakhani talking frankly to kids who are curious
This video features a young woman named Ellie DP, from Essex, UK. She is a
Philip Hojgaard-Olsen is a 19 year old Australian whose biggest dream is to move out
“Mind Over Muscle” is a biographical short film by the late Peter Dalrymple, chronicling his
Support Workers
Pete Timbs talks with his co-host Tristram and his support worker Dan Conaghan. Tristram is
A self-directed approach enables me to recruit and choose my own team of staff who
Support workers. I don’t know about you, but sometimes I feel as though they are
Back in 2007 I worked as a research associate on an evaluation of the pilot
Mental Health
That’s right, if you’re interested in this topic, you might have something to say about
Therapies
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