Health, Support & Wellbeing

  • Living with NMCs

    Stories from people with neuromuscular conditions living the life they choose.

  • Support Workers

    Managing support workers, and learning to be a boss - it can be a learning curve for many!

  • Independent Living

    Thinking about living independently? Or maybe you're housing-curious? Come here to find out info on independent living, accessible housing and more!

  • Mental Health

    You don't need to go through a mental health crisis alone, there are services and supports out there for everyone, including you.

  • Covid Collective

    Stories, resources and tips on dealing with the pandemic.

  • Therapies

  • Living with NMCs

    Sarah Jenkins’ passion for drone photography was kindled during COVID lockdown. Now she’s an award winning creative.

    By Adelaide Miller, ABC News. Posted Sun 15 May 2022. The sun beats down on …

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    Escape from the Country

    Hi, I’m Jack Wason, I’m 19, I have Duchenne Muscular Dystrophy and grew up on …

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    Living to Live

    After being given the opportunity to have a go at shooting and subsequently becoming part …

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    Nutrition in DMD

    A range of resources and videos on nutrition for people living with Duchenne MD, including …

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    Is this YOUR Carer?!

    I am Frances Turner aged 79 living in a house in Sydney’s Inner West and …

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    The Loop

    When it comes to useful resources for people living with neuromuscular conditions, The Loop is …

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    Neuromuscular Fact Sheets

    To address some of the issues identified by people with neuromuscular conditions in getting appropriate …

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    Growing Up with Spinal Muscular Atrophy

    Maija, a young girl in New Zealand talks about her life with SMA, and the …

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    Living his best life

    Dr Phil interviews 17 year old Jake and his Mum about not letting Duchenne Muscular …

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    Advice From Strangers

    I was catching the train through the inner west of Sydney a few weeks ago, …

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    Don’t go down without a fight

    Muscular Dystrophy Queensland created a platform for people in the neuromuscular community to share their …

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    Breath of Fresh Air

    For a long time I had known that the likelihood of needing nocturnal ventilation was …

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    Living a Full Life with Muscular Dystrophy

    This video from Canada is about a man with Becker MD, who challenges society’s assumptions …

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    Living with Dermatomyositis

    Welcome. My name’s Rowena Newton and I’m a 40 something wife, mother of two children …

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    Gatecrashing MD – Living with an undiagnosed, adult-onset neuromuscular condition

    When I walked out of the office of an Ad Agency in Pyrmont one Friday …

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    Living with SMA

    My name is Ellie Robertson and I am a woman living with Spinal Muscular Atrophy …

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    8 days a week – Support Workers and How I Learned to Be the Boss

    Support workers. I don’t know about you, but sometimes I feel as though they are …

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    Team Connor – How we parent our child with Myotonic Muscular Dystrophy

    An interview with Nikki Rabold-Cowley Can you tell me a little about yourself and your …

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    Finding my way, with CMT

    Living with Charcot Marie Tooth Syndrome (CMT), a type of neuromuscular disease, can be seen …

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    Living with Inclusion Body Myositis

    My name is Gordon Osmond, I am a retired acrylic and oil artist and I …

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    Kids meet a guy with Muscular Dystrophy

    This cute video from America features Amin Lakhani talking frankly to kids who are curious …

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    This is Me – Scott

    Scott is a young man with a plan. He wants to work in the travel …

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    Fashionably yours

    This video features a young woman named Ellie DP, from Essex, UK. She is a …

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    Normal, Normal

    Philip Hojgaard-Olsen is a 19 year old Australian whose biggest dream is to move out …

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    Peter Dalrymple – Mind over Muscle

    “Mind Over Muscle” is a biographical short film by the late Peter Dalrymple, chronicling his …

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    Support Workers

    Laughter really is the best medicine

    Hi, I’m Marie 😊 I want to share my story and recent experiences of first-time …

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    Worker Screening for Self-managing participants

    The NDIS has produced a number of guides on how to screen support workers for …

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    Escape from the Country

    Hi, I’m Jack Wason, I’m 19, I have Duchenne Muscular Dystrophy and grew up on …

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    Grow Bold

    Pete Timbs talks with his co-host Tristram and his support worker Dan Conaghan. Tristram is …

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    There’s no ‘I’ in Team: Lessons in creating your own dream team

    A self-directed approach enables me to recruit and choose my own team of staff who …

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    8 days a week – Support Workers and How I Learned to Be the Boss

    Support workers. I don’t know about you, but sometimes I feel as though they are …

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    The Journey towards Self-Management

    Back in 2007 I worked as a research associate on an evaluation of the pilot …

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    Independent Living

    Accessible Housing options

    Housinghub.org.au is a national website that advertises properties for people with disability. It is free …

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    Mental Health

    Online Grief Information Sessions

    Online Grief Information Sessions with two Grief Counsellors During times of crisis many of us …

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    Disability Royal Commission – Counselling and support service

    Counselling and support for people affected by the Disability Royal Commission Relationships Australia NSW is …

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    Seek Help for your Mental Health

    Muscular Dystrophy News is a US based digital news publication dedicated to offering comprehensive daily …

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    Waiting for your story

    That’s right, if you’re interested in this topic, you might have something to say about …

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    Covid Collective

    Surviving Covid-19 when you live with SMA

    An extract from the diary of Carolyn Campbell-McLean Dear Diary, Day 1 – Feeling sick …

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    Covid-19 Hub from People with Disability Australia

    People with disability face specific challenges during the COVID-19 pandemic. People with Disability Australia has …

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    Coronavirus (COVID-19) information for people with disability

    Head to the NDIS Commission website for links to updates about COVID-19 and resources for …

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    Omicron wreaks havoc on NSW’s vulnerable

    Ellie Robertson has one simple question. The 53-year-old Sydney woman lives with spinal muscular atrophy …

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    In the midst of a pandemic, time is precious for those with a progressive condition

    People living with a disability can have altered, or even shortened time limitations. As society’s …

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    As a disabled person trying to ‘live with’ Covid in Australia, every day is a game of figuring out who is least likely to kill me

    I’m the disabled guy on several committees, advising governments what to do to keep people …

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    Woman living with muscular dystrophy forced to spend $1,300 on rapid antigen tests for in-home carers

    It’s not easy to quantify the cost of the Omicron wave to Carolyn Campbell-McLean, but …

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    COVID ‘Freedom Day’ is a terrifying prospect for some people. I am one of them.

    I recently received a text from a friend asking: “Are you excited for freedom?” A …

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    Therapies

    Waiting for your story

    That’s right, if you’re interested in this topic, you might have something to say about …

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