Love, Life & Loss

  • Relationships & Sexuality

    Dating, love, marriage, sex and sexuality...

  • Families & Carers

    All families have their ups and downs

  • Parenting

    Parenting a child with MD, and parenting as a person with MD

  • Grief & Loss

    There are no rights or wrongs with grief, everyone copes in different ways. Information and resources on this part of life.

  • Relationships & Sexuality

    Info and Resources on Sexuality and Relationships

    We talked about Sex and Relationships! Of course, people with disability have sexual desires, feelings …

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    Sexual supports and the NDIS

    An important article on the recent Federal Court findings regarding sexual supports, written by Dr …

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    “Iso reading” book review

    Awesome Australian disability advocate Carly Finlay reviews US YouTube sensation Shane Burcaw’s autobiographical, humorous read …

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    Love, don’t Judge

    This interabled couple from Victoria share their story on Love Don’t Judge

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    Taking a Chance on Love

    An Interview with Natalie Macaulay Natalie generously shares her story about how she met and …

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    Accessing Sex Worker Resources

    Everyone has a right to sexual expression and that includes people with disability. Touching Base …

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    Podcast – Hot, disabled and not afraid to show it

    From the BBC Podcast Series Ouch: Disability Talk This podcast features a light-hearted discussion with …

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    Families & Carers

    Making our voices heard

    My Doctors Laughed Being a foster child, I have never had a family history to …

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    Laughter really is the best medicine

    Hi, I’m Marie 😊 I want to share my story and recent experiences of first-time …

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    Is this YOUR Carer?!

    I am Frances Turner aged 81 living in a house in Sydney’s Inner West and …

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    Resources for parents

    The office of the NSW Kid’s Guardian has produced a comprehensive list of resources of  …

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    Growing Up with Spinal Muscular Atrophy

    Maija, a young girl in New Zealand talks about her life with SMA, and the …

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    A Grandfather’s Story

      Family Bio Our names are Patty and Peter O’Keeffe and we have been caring …

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    Why I don’t want you to feel sorry for my child

    When you have a child with a disability or special needs, you learn to develop …

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    Interview with a Grandmother – A Family Story Part 2

      Anne-Maree Warman shares the second part of her conversation with MDNSW Project Officer Carolyn …

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    Interview with a Grandmother – A Family Story Part 1

    Anne-Maree Warman’s work at the Teacher’s Mutual Bank, allows her to volunteer for MDNSW as …

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    Parenting

    Making our voices heard

    My Doctors Laughed Being a foster child, I have never had a family history to …

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    Resources for parents

    The office of the NSW Kid’s Guardian has produced a comprehensive list of resources of  …

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    Why I don’t want you to feel sorry for my child

    When you have a child with a disability or special needs, you learn to develop …

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    Living with Dermatomyositis

    Welcome. My name’s Rowena Newton and I’m a 40 something wife, mother of two children …

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    Gatecrashing MD – Living with an undiagnosed, adult-onset neuromuscular condition

    When I walked out of the office of an Ad Agency in Pyrmont one Friday …

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    My Gifts as a Parent with SMA

    Something that I have noticed as a parent with Spinal Muscular Atrophy (SMA), is other …

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    Team Connor – How we parent our child with Myotonic Muscular Dystrophy

    An interview with Nikki Rabold-Cowley Can you tell me a little about yourself and your …

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    Being disabled doesn’t stop us being great parents

    This wonderful video from England tells the story of two people with disability raising their …

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    Grief & Loss

    Making our voices heard

    My Doctors Laughed Being a foster child, I have never had a family history to …

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    Online Grief Information Sessions

    Online Grief Information Sessions with two Grief Counsellors During times of crisis many of us …

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    In Memoriam

    IN MEMORIAM Losing a loved one to muscular dystrophy can leave you feeling lost and …

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    Diagnosis

    An excerpt from The Ben Book: A Father’s Memoir appears below, with the author’s permission. …

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    Palliative Care Resources

    NSW Health has produced a series of accessible materials to help families discuss end-of-life and …

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    Moving forward with grief

    In this TED Talk, Nora McInerny talks candidly about dealing with grief.

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