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Powerchair Football – An interview with Jaxon Taylor

…A. My favourite position to play is on the wing. Q. How do you feel when you’re on the court? A. When I’m on the court, I have this adrenaline…

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We’re supporting the Australian Neuromuscular Disease Registry

…our community. We encourage all MDNSW members living with a neuromuscular condition to find out more by visiting the website and to register your interest. Find out more at www.australiannmdregistry.org.au…

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Events & programs

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MD Makers Day

…Silverwater. Transport support available if required. Cost: Free Please note, this is a COVID safe event so up-to-date vaccination status, social distancing and check-in is required. RAT testing prior to…

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Parenting with MD Wrap Up

…was listened to and was understood, not judged! Grateful to hear other’s stories and get ideas.” “Good to see that everyone’s very similar, got lots of things in common. I’m…

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Peer Connect ‘Spooky Trivia’ Family Fun Night

…better, it’s free! If you want to join please contact Carolyn on 0408 472 510 via email at carolyn.cm@mdnsw.org.au by Monday 9 May 2022. We look forward to seeing you!…

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Breath of Fresh Air

…early days) and most nights I am sleeping through with the machine (I call him ‘Feel Good Phil’ as it’s a Philips Dreamstation, LOL). I feel so much better and

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Priority Access Criteria

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Coronavirus (COVID-19) information for people with disability

Commission Link to NDIA information Resources for Aboriginal and Torres Strait Islander people and remote communities Use trusted information sources How to make a complaint about a provider Visit www.ndiscommission.gov.au/participants/covid-19-people-disability…

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My Bali – A Wheelchair Accessible Holiday

…it started to PEE on my wheelchair. You heard that right, PEE. And that’s why I now call orangutans “urinatatans”. Hope you enjoyed my little story, if you are like…

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“Iso reading” book review

…Carly Finlay reviews US YouTube sensation Shane Burcaw’s autobiographical, humorous read about his life with SMA. http://carlyfindlay.com.au/2019/07/20/book-review-strangers-think-my-girlfriend-is-my-nurse-by-shane-burcaw/ Read more from Carly Findlay Check out Shane and fiancé Hannah’s YouTube Channel…

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Survey results tell us – You love Peer Connect!

…Scheduling more various times, including evenings. Introduce new topics, such as women’s access to health, NDIS, and managing health. Overall, you told us that you enjoy participating in the Peer…

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Register for small group workshops now

The Physical Disability Council of NSW are running FREE online and in-person workshops for people with disability, their partners or family members providing direct informal (unpaid) support. Workshops will run…

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A donors journey with MD – Giving the gift of a donation

…my Mum some advice, what can I possibly say?” when he realised that collectively we had “almost 90 years of married experience.” With all that “experience” we had also acquired…

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Advocacy

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Your MDNSW 2019-20 Yearbook

To record and celebrate the achievements of our community, during what was a particularly challenging year for everyone, we’ve developed a new Yearbook! The Yearbook features highlighted events and activities…

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Who we are

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My Gifts as a Parent with SMA

…busy mum life, whilst trying to decipher the algorithms of life through my love of anthropology, metaphysics, and economics. I have degrees in Business (Sports Management), Economics and Law. If…

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PDCN Post-Traumatic Growth Workshop

The Physical Disability Council of NSW is hosting a brand new free Post-Traumatic Growth (PTG) Workshop via Zoom on Tuesday 22 November, from 10:00am – 12:15pm. This workshop provides information…

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Have your say in a national rare disease project

…You are invited to complete a short anonymous survey: RArEST health professionals needs assessment (qualtrics.com) If you have any questions about the survey, please contact the RArEST team on rarest@unsw.edu.au….

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