Tag: MD

Women Sparkle and Shine at the MDNSW Women’s Retreat

Last weekend, a group of 8 women living with NMCs and their support workers came …

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The Power of Powerchair Hockey – Three player perspectives

Ryan Seck: “My name is Ryan and I’m currently 16 years old. Being diagnosed with …

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Peer Connect Retreat heads to Parramatta

Over the weekend of 26 – 28 May a group of 20 people with NMCs …

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Life After School Info Share Session

Last month our Info Share topic was Life After School. The topic was inspired after …

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A donors journey with MD – Giving the gift of a donation

My journey began over 40 years ago when through a mutual friend I met my …

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My journey to parenthood

Written by Brenton Smith When I lived by myself with friends, Chrissie was my friends …

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Sarah Jenkins’ passion for drone photography was kindled during COVID lockdown. Now she’s an award winning creative.

By Adelaide Miller, ABC News. Posted Sun 15 May 2022. The sun beats down on …

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John’s first time at Adventure Camp

Our Adventure Camp was held in April, and for 7 year old John who lives …

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In the midst of a pandemic, time is precious for those with a progressive condition

People living with a disability can have altered, or even shortened time limitations. As society’s …

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Woman living with muscular dystrophy forced to spend $1,300 on rapid antigen tests for in-home carers

It’s not easy to quantify the cost of the Omicron wave to Carolyn Campbell-McLean, but …

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COVID ‘Freedom Day’ is a terrifying prospect for some people. I am one of them.

I recently received a text from a friend asking: “Are you excited for freedom?” A …

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Gatecrashing MD – Living with an undiagnosed, adult-onset neuromuscular condition

When I walked out of the office of an Ad Agency in Pyrmont one Friday …

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Kids meet a guy with Muscular Dystrophy

This cute video from America features Amin Lakhani talking frankly to kids who are curious …

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地上ヘ (To the ground) – Accessible Japan

Just a quick bio – I’m 43, I have Duchenne Muscular Dystrophy, I  use NIV …

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Starting In A Mainstream High School: MD Style!

Let’s talk about high school. As a kid with Muscular Dystrophy, starting high school was …

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